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Technology Use and Access in MS

The following questionnaire has been developed by researchers at the University of Nottingham.

The purpose of this questionnaire is to get a better understanding of the access people have to technology, and any particular difficulties people may encounter with using their phones, tablets and computers.

Some people who live with multiple sclerosis may experience difficulties with their memory, language and reasoning skills; also known as cognitive problems, but there is currently no standardised way to assess this within the NHS. Therefore, people don't realise they have cognitive problems until they become severe and they are not offered any support for these problems.

This work is part of a larger project seeking to develop a standardised cognitive screening and rehabilitation for people diagnosed with multiple sclerosis, so that people can get access to the support they require, if necessary.

One possible solution is to offer people the opportunity to conduct cognitive assessments on computers or computer tablets. This survey forms part of our initial work and aims to discover general levels of technology use, as well as specific problems people may encounter when using technology. 

We will follow ethical and legal practice and all information will be handled in confidence. Under UK Data Protection laws the University is the Data Controller (legally responsible for the data security) and the Chief Investigator of this study (named above) is the Data Custodian (manages access to the data). This means we are responsible for looking after your information and using it properly. Your rights to access, change or move your information are limited as we need to manage your information in specific ways to comply with certain laws and for the research to be reliable and accurate. To safeguard your rights we will use the minimum personally – identifiable information possible.

You can find out more about how we use your information and to read our privacy notice at:

https://www.nottingham.ac.uk/utilities/privacy.aspx.

The data collected for the study will be looked at and stored by authorised persons from the University of Nottingham who are organising the research. They may also be looked at by authorised people from regulatory organisations to check that the study is being carried out correctly. All will have a duty of confidentiality to you as a research participant and we will do our best to meet this duty.

At the end of the project, all raw data will be kept securely by the University under the terms of its data protection policy after which it will be disposed of securely. The data will not be kept elsewhere.
 

If you have any questions or concerns, please don’t hesitate to ask. You can contact the researcher, Kyle.Harrington@Nottingham.ac.uk if you have any concerns about your data.

Please take your time and read each question carefully. The questionnaire will take approximately 20 minutes.

Once you have completed the survey, you will be given the opportunity to enter a prize draw for £50 worth of shopping vouchers. If you wish to enter the survey, you will need to provide a contact email address. We will only use this to send your voucher should you be selected in the prize draw.

Please confirm the following:

1) I am over 18 years old and have been diagnosed with Multiple Sclerosis 
2) I understand I have a right to withdraw and am under no obligation to complete the study
3) I understand that upon completing the survey, it may be impossible for my data to be removed.
4) I understand that relevant sections of my data collected in the study may be looked at by the research group and by other individuals responsible for monitoring and audit purposes. I give permission for these individuals to have access to these records and to collect, store, analyse and publish information obtained from my participation in this study.
5) I understand that my personal details will be kept confidential.
6) I agree that my research data may be stored and used in possible future research during and after 7 years, and shared with other researchers including those working outside the univeristy. 
7) I confirm I have read and understand the description given above
8) I agree to take part in the study as has been described