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PARTICIPANT INFORMATION AND INFORMED CONSENT

 

University of Nottingham

Centre for Forensic & Family Psychology    

Division of Psychiatry & Applied Psychology

School of Medicine, Faculty of Medicine & Health Sciences

 

Title of Project: The impact of an individual’s adverse childhood experience on one’s beliefs, traumatic responses and interactions with caregiver(s).

 

Researcher: Liew Shi Hui (email: shihui.liew@nottingham.ac.uk)

Principal Investigator: Dr Shihning Chou (email: shihning.chou@nottingham.ac.uk)

                       

Ethics Reference Number: FMHS 249-1802

 

You are being invited to participate in this research study because you are:

1) Between the ages of 18 to 25

2) Residing in United Kingdom

3) Female

 

If you have any questions or concerns, please do not hesitate to contact us at the above email addresses.

 

What is the study about?

The purpose of this research study is to understand how an individual’s adverse childhood experience influences one’s 1) beliefs, 2) traumatic responses and 3) interaction with one’s caregivers.

 

This study is an internet mediated research. The online survey will take you approximately 20 minutes to complete. 

 

If you do decide to take part, you will be asked to complete a consent form. Your participation is voluntary, and you are free to withdraw (i.e. pull out) at any point before or during the study. It will not affect you in anyway. When you choose to withdraw halfway through the survey, approval for use of your prior responses will be sought. If you choose to withdraw your consent, the responses will be deleted and not used for analysis.

 

However, if you complete the whole questionnaire and end the survey, it will not be possible to withdraw your consent after closing the survey and seek for the data to be destroyed. This is because, this study uses anonymous questionnaires. Hence, there will not be any identifiers linking the dataset to your identity and allowing the researchers to retrieve the correct dataset.

 

Will the research be of any personal benefit to me?

There is no direct personal benefit to you. However, the information that the researcher receives from this study will deepen the understanding regarding the impact of adverse childhood experiences on an individual’s well-being and relationship. Based on the research findings, informed preventive and therapeutic interventions targeting an individual with adverse childhood experiences can be introduced.

 

What will happen to the information I provide?

All of the information that you provide during the study will be kept confidential and anonymous. Only your data from the questionnaires will be used when reporting the research findings. You will not be asked for your name or any other personal details, so it will not be possible for you to be linked with the data. Meanwhile, the survey site – hosted on a secure server - automatically logs several data, such as network address and HTTP request, when you complete the questionnaires. This information is used for system administration, for bug tracking and for producing usage statistics. The researcher and principal investigator will not have any access to these information. The UK Data Protection Act 2018 will apply to all information gathered within the questionnaires.

 

With regard to the safeguarding of your response, we will do everything possible to make sure your answers in this study remain anonymous. We will reduce any risks by keeping all information gathered within the questionnaires on password-locked computer files so that no data can be accessed by anyone other than the researcher and the supervisor. The data will also be stored in a thumb drive that is only accessible to the researcher and supervisor. All of the anonymous data may be stored by the university for up to 25 years and for a period of no less than 7 years after the research project finishes. However, as with any online related activity the risk of a breach is always possible.

 

What will you do with the data?

We collect personal data under the terms of the University’s Royal Charter in our capacity as a teaching and research body to advance education and learning. Data collection on this occasion is specially for researcher’s Year 1 dissertation and final thesis for the Doctorate. The results of the study may be published in peer reviewed journals and presented at academic or professional conferences. The data will be aggregated and reported anonymously, with any identifying information removed. If you would like a summary of the results, you can contact the researcher using the email address above.

 

Extracts of your data may be disclosed in published works that are posted online for use by the scientific community. Your data may also be stored indefinitely on external data repositories (e.g., the UK Data Archive) and be further processed for archiving purposes in the public interest, or for historical, scientific or statistical purposes. It may also move with the researcher who collected your data to another institution in the future.

 

In this survey, you will be asked to indicate which county you currently reside in. This information is solely for the purpose of allowing the researcher to gain a better understanding of the geographical spread of the responses. This information will not be used during the analysis of the data.

 

Are there any risks to the study?

We believe there are no known risks linked with this research study. Past studies conducting on similar topics have observed minimal harm and discomfort. However, as there are questions regarding adverse childhood experience and present behaviors towards your caregiver(s), you may still experience some distress when answering the questions.

 

If you have any questions or concerns regarding this study, please do not hesitate to ask. We can be contacted before and after your participation at the above email addresses.

 

This study has been reviewed and given a favorable opinion by the University of Nottingham, Faculty of Medicine & Health Sciences Research Ethics Committee (FMHS 249-1802).

 

More information regarding the NEW General Data Protection Regulation

Privacy information for Research Participants

For information about the University’s obligations with respect to your data, who you can get in touch with and your rights as a data subject, please visit: https://www.nottingham.ac.uk/utilities/privacy.aspx.

 

Legal basis for processing your personal data under GDPR

The legal basis for processing your personal data on this occasion is Article 6(1a) consent of the data subject AND Article 6 (1f) processing is necessary for the purposes of the legitimate interests pursued by the controller.

 

Special category personal data.

In addition to the legal basis for processing your personal data, the University must meet a further basis when processing any special category data, including: personal data revealing racial or ethnic origin, political opinions, religious or philosophical beliefs, or trade union membership, and the processing of genetic data, biometric data for the purpose of uniquely identifying a natural person, data concerning health or data concerning a natural person’s sex life or sexual orientation.

The basis for processing your sensitive personal data on this occasion is Article 9(2a) the data subject has given explicit consent to the processing AND Article 9(2j) processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes.

Disclaimer: The new GDPR requirements have been incorporated into this study and this document

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