This study aims to investigate what people aged 50 or above are prepared to change in their lifestyle to potentially reduce the risk of having Alzheimer's disease/dementia in the future. Around 1,000 people are being invited to answer this online questionnaire in the UK. This study will help researchers and health professionals to better understand the scope for changing lifestyle in the anticipation that reducing health risk behaviours will reduce the number of people developing dementia.
Before you decide whether you wish to participate or not, we would like you to understand why the research is being done and what it would involve for you.
- You are eligible to take part if you are aged 50 years old or above, currently live in the UK, and have never received a dementia diagnosis.
- The online questionnaire is divided into three parts. Your answers to all questions will remain anonymous. Part one will ask for some demographic information (e.g. gender, age). Part two is about your current lifestyle and health (e.g. current diseases, levels of physical activity), as well as what you would be prepared to change in order to reduce your risk of developing dementia (e.g. stop smoking). In part three we will ask you about your beliefs and attitudes towards dementia risk reduction (e.g. how you feel about changing your lifestyle in order to reduce the risk of dementia). It should take up to 20 minutes to complete.
- It is up to you to decide whether or not to take part and your decision will not affect your legal rights. Your participation is voluntary and you can stop the survey at any point. However, if you complete some questions, but not the entire survey, any answers you have given to previous questions may still be accessed and used by the researchers through the survey system.
- We cannot promise the study will help you, but you may find that completing the study questions helps you to consider improving your lifestyle in ways that could reduce your risk of developing dementia.
- A study report will be generated from the results. These will be publicised via social media, conferences, newsletters, and academic papers.
- All information that is collected about you during the course of this study will be kept strictly confidential and will be stored in a secure and locked office and on a password protected database. All the research data will be kept securely for seven years. After this time the data will be disposed of securely. During this time all precautions will be taken by all those involved to maintain the confidentiality of your data, and only members of the research team will have access to it for the purposes of analysis.
This survey is anonymous and confidential. After completing all the questions you will have the opportunity to provide us with your contact details for a prize draw to win one of three £50 Amazon vouchers. The information you provide in this particular section is completely separate from the survey and will enable us to contact you if you win the prize. If you would prefer not to complete the personal information, you will not be included in the prize draw. However you will still be able to submit your responses which will remain anonymous.
More information about the study
This study is funded by the Alzheimer’s Research UK Midland Pump Prime Grant, led by Dr Deborah Oliveira. The study is part of a larger study called PRIDE (Promoting Independence in Dementia), which is funded by the Economic Social Research Council (ESRC) - Grant Number: ES/L001802/1. The PRIDE study is led by Professor Martin Orrell, Director of the Institute of Mental Health, University of Nottingham. This project has been reviewed by a Research Ethics Committee to protect your safety, rights, wellbeing and dignity. This study has been reviewed and been given a favourable opinion by the East Midlands - Nottingham 1 Research Ethics Committee Ethics Committee (IRAS project ID 177280; REC reference 16/EM/0044).
It is not anticipated that your participation in this study will cause you any harm or risk. If you have any questions or experience any difficulty completing the questionnaire, please contact Dr Deborah Oliveira by telephone: 0115 74 84306 (direct); or by email: firstname.lastname@example.org. If you remain unhappy and wish to complain formally, you can do this by contacting our Patient Advice and Liaison Service (PALS) by telephone: 0800 015 3367; or by e-mail: PALS@nottshc.nhs.uk .
* Please read carefully the following statements:
- I have read and understood the information provided above;
- I understand that the information I provide in this questionnaire will be used as part of the ARUK Midland funded study project entitled “How much are individuals aged 50+ prepared to change their lifestyle to reduce their risk of having dementia in the future?”;
- I have never been diagnosed with dementia;
- I live in the UK;
- I am aged 50 or above.
If you agree with ALL these statements, please tick the ACCEPT button at the bottom of this page to progress to the questionnaire.
If the statements do not apply to you, or you do not wish to participate in the research, please close the browser by clicking on the 'X' at the top right hand corner of the page.