Dementia Service Identification Questionnaire

Developing Good Practice Guidance for International Dementia Care in collaboration with the World Health Organization 

Thank you for participating in this survey. 

Following the launch of the "Guidance on community mental health services: Promoting person-centred and rights-based approaches" document by the World Health Organization in June 2021, they have been asked to create a similar document for dementia services.  This is also in support of WHO’s global mandate - the Global action plan on the public health response to dementia 2017-2025 (WHA A70/28) - which envisions a world in which dementia is prevented and people with dementia and their caregivers live well and receive the care and support they need to fulfil their potential with dignity, respect, autonomy, and equality.

This survey will enable us to collect as many details about dementia services from around the world to help us create this document. We specifically would like to know the service contact details, the type of services they offer, and how they promote good practice in relation to human rights and person-centred approaches within these five areas: 1) respect for legal capacity; 2) non-coercive practices; 3) participation; 4) community inclusion, and; 5) person-centred approaches. We have attached our guide about these rights aspects to help explain these terms here and later on (click more info : https://docs.google.com/document/d/e/2PACX-1vTyykTZl4Iiw-7vfc2j7B3EWzgAmaraBBrHdd7FCRDwRdgIjnub2Cx5W4tyy1lMkAdu3zkFmy_-DjMB/pub 

The whole questionnaire can take a while to complete, so we have enabled you to finish the questionnaire later if you so wish. The data, however, will only be uploaded by clicking FINISH on the final page. From this point, it will not be possible to withdraw or change your service answers. 

After pressing FINISH to submit your answers, another page with the university team contact details will appear. There will also be another link that asks you to provide your contact details. This is so we are able to follow up with you if we cannot get hold of the service you have submitted. Please note your details will not be disclosed or published, and will be stored separately from the service details. We will only be able to match up your contact details and your survey response using a passcode or memorable word you will be asked to provide below. If you choose to provide your details, click the link which will send you to a different survey. 

For a more detailed information sheet, please click here: https://docs.google.com/document/d/e/2PACX-1vRZufAUDFbiYyzY-2y4OkP00UKrB7qQOcWzrRAKMGZYrSCj83rd8odHFZ7k2QWiFg/pub

This survey will close on 31st October 2023 at 23:45 GMT.

PLEASE NOTE: It is possible that the survey may be too long or complex to complete. Please be sure that the researchers are on hand if you wish to ask any questions or if you would like help completing the questionnaire. You can email or call the team on the contact details below.

This questionnaire is being used for a PhD research project but also for an international WHO document. If you have any questions, please contact: 

Briony Harden (email msxbh4@nottingham.ac.uk) or if you have any concerns about any aspect of this study please contact the Research Supervisors:  Professor Martin Orrell (email mszmwo@nottingham.ac.uk) or Dr Orii McDermott (email msxom1@nottingham.ac.uk). You can also contact Orii on 07811 940708. Please allow for 2-3 working days before a response; this phone is not monitored every day.    

Acknowledgements

The University of Nottingham thanks the WHO for its continuous support through the research project.